This website is all about Scott Murphy a normal, yet unique, man who sadly passed away on Friday 27th April 2012 after living with a rare genetic condition called Von Hippel-Lindau (VHL).
There is much more about Scott's life in the Scott's Story section of this website, a biography if you like.
Alongside raising awareness of VHL, and spreading Scott's story, this website is also designed to raise much needed funds for the causes that helped Scott throughout his battle.
Currently I am training to run the Virgin Money London Marathon on 26th April 2015 for Help the Hospices. I chose this charity as their work helped Scott more than any other.
It should be made clear that the majority of VHL sufferers don't even know they have it, at least until later life and even then they have very mild or unnoticeable symptoms, Scott's case was one of the few severe examples of the condition.